Updated April 4, 2019
(91outcomes.com) -- For the last several years, there has been gradually building momentum to develop treatments for Gulf War Illness, a debilitating chronic health condition that science has shown to affect between one-fourth and one-third of the veterans from the 1991 Gulf War and that likely resulted from a combination of toxic exposures.
SPECIFIC ACTION NEEDED: The current targeted effort seeks co-signers in Congress before the fast approaching deadline for "Dear Colleague" letters to continue funding for the treatment-focused Gulf War Illness Research Program (GWIRP). It is a unique, congressionally-directed program (CDMRP) aimed at improving the health and lives of veterans with Gulf War Illness.
Last year, one-fifth of Congress signed on in support, including 83 Members of the House and 20 U.S. Senators. (FY19, calendar year 2018). This year, we saw that increase in the House to 97 Members, while the Senate effort is still in progress.
A list of the current cosigners and the actual text of the Dear Colleague letter are posted below. Read below for more details before calling your
House Deadline: Thursday, March 28, 2019
Senate Deadline: Friday, April 5, 2019
STEP-BY STEP, HOW YOU CAN HELP IN JUST 5 MINUTES:
1. Find your federal representatives in Congress. You have one Representative in the House who represents the Congressional district in which you live and two U.S. Senators who represent your entire state.
- "May I please speak with the legislative staff person who handles DoD appropriations?"
3. State your name and that you are a constituent. For example:
- "My name is Norman Schwartzkopf. I'm a constituent who lives in Tampa."
HOUSE:"I'm calling to request that Congressman Smith sign onto the"Sablan-Bergman Dear Colleague letter for the Gulf War Illness Research Program" (FY2020, DoD).
- SENATE: "I'm calling to request that Senator Jones sign onto the "Baldwin Dear Colleague letter for the Gulf War Illness Research Program" (FY2020, DoD).
5. Briefly tell them you are a Gulf War veteran (or the loved one of a Gulf War veteran). For example:
- "I'm also a Gulf War veteran myself."
6. Give the staff person some important details. They should have a copy of the Dear Colleague request in their system, but if not:
- The deadline to sign-on is: (see the top of this article for deadlines)
- The staff contacts are:
House: Ms. Frances Diaz in the office of Rep. Gregorio Sablan (D), and Mr. Remy Fortin in the office of Rep. Jack Bergman (R)- Senate: Mr. Blake Souter in the office of Senator Tammy Baldwin.
7. Ask if the staffer would like you to email a short one-pager about the program.
8. Thank the staff person for their time. Ask that the staff person if they would please follow-up with you to let you know the Senator's
TIPS:
- Be professional
- Be nice
- Be brief
- Be specific (as described above)
- Do not argue or get angry with the staffer under any circumstance. There are often many factors and processes involved in decisions to sign-on. Message us if there are any unusual issues.
=======================
FREQUENTLY ASKED QUESTIONS (FAQ's)
1) WHAT IS THE GOAL?
The goal is to get as many members of Congress as possible to co-sign before the deadline.
The goal of the GWIRP is improved health and lives of veterans with Gulf War Illness.
The goal of the GWIRP is improved health and lives of veterans with Gulf War Illness.
2) WHAT CAN I DO TO HELP?
Call or message your Congressperson in the U,S. House and your two U.S. Senators for your state.
See above for quick and easy steps to make your request.
3) WHO IS LEADING THIS FUNDING EFFORT IN CONGRESS?
This is a fully bipartisan effort.
This is a fully bipartisan effort.
- Rep. Gregorio Sablan (D-U.S. Territory of Northern Mariana Islands), and
- Rep. Jack Bergman, LTG, USMC (Ret.) (R-Michigan) are co-leads. Both serve on the U.S. House Committee on Veterans' Affairs.
- House Veterans Affairs Committee Chairman Rep. Mark Takano (D-California) and Ranking Member Rep. Phil Roe, M.D. (R-Tennessee) were the first House co-signers.
- U.S. Senator Tammy Baldwin (D-Wisconsin) is leading the bipartisan effort for the Senate.
4) AT WHAT LEVEL SHOULD THE FUNDING BE SUPPORTED, AND WHY?
The request is for sufficient continuation funding for this successful, unique, and important program.
5) WHY IS THIS PROGRAM NEEDED?
Reports by the National Academy of Sciences’ Institute of Medicine (IOM)2 (pp. 10, 260-64) and the Congressionally-mandated VA Research Advisory Committee (RAC) on Gulf War Veterans’ Illnesses3 emphasize that:
In addition, important discoveries made by the GWIRP may also help protect current and future U.S. military service members at risk of similar toxic exposures. (RAC 2014, pp. 1, 4, 5, 13, 78, 83; IOM 2010, pp. 10, 260-64.)
6) WHO SUPPORTS THIS PROGRAM?
Many national veterans service organizations (VSO's) have supported the GWIRP.
The Congressionally-mandated Research Advisory Committee (RAC) on Gulf War Veterans' Illnesses and the Independent Budget called for support for this program in their reports.
VSO supporters (updated as new supporters are added) for FY20 include:
From previous years:
Reports by the National Academy of Sciences’ Institute of Medicine (IOM)2 (pp. 10, 260-64) and the Congressionally-mandated VA Research Advisory Committee (RAC) on Gulf War Veterans’ Illnesses3 emphasize that:
“effective treatments, cures, and, it is hoped, preventions” for GWI can “likely be found,” “…through a concerted national effort and rigorous scientific input.”
In addition, important discoveries made by the GWIRP may also help protect current and future U.S. military service members at risk of similar toxic exposures. (RAC 2014, pp. 1, 4, 5, 13, 78, 83; IOM 2010, pp. 10, 260-64.)
Many national veterans service organizations (VSO's) have supported the GWIRP.
The Congressionally-mandated Research Advisory Committee (RAC) on Gulf War Veterans' Illnesses and the Independent Budget called for support for this program in their reports.
VSO supporters (updated as new supporters are added) for FY20 include:
1 | Veterans of Foreign Wars (VFW) |
2 | Veterans for Common Sense |
3 | Disabled American Veterans (DAV) |
4 | Vietnam Veterans of America (VVA) |
5 | Iraq and Afghanistan Veterans of America (IAVA) |
6 | AMVETS |
7 | Paralyzed Veterans of America (PVA) |
8 | Blinded Veterans Association |
9 | The Enlisted Association (TREA) |
10 | Military Officers Association of America (MOAA) |
11 | Fleet Reserve Association |
12 | Association of the United States Navy (AUSN) |
13 | Air Force Sergeants Association (AFSA) |
14 | National Gulf War Resource Center |
15 | Burn Pits 360 |
16 | Sgt. Sullivan Circle |
17 | National Vietnam and Gulf War Coalition |
From previous years:
FY2019 VSO supporters included: Veterans of Foreign Wars, Veterans for Common Sense, National Gulf War Resource Center, National Vietnam and Gulf War Coalition, Burn Pits 360, Disabled American Veterans, Paralyzed Veterans of America, AMVETS, Vietnam Veterans of America, Jewish War Veterans of the USA, Fleet Reserve Association, Military Order of the Purple Heart, Enlisted Association of the National Guard of the United States, and the Air Force Association.
FY18 VSO supporters included: The American Legion; AMVETS; Burn Pits 360; Disabled American Veterans (DAV); Lung Cancer Alliance; National Gulf War Resource Center (NGWRC); National Vietnam & Gulf War Veterans Coalition; Paralyzed Veterans of America (PVA); Sergeant Sullivan Circle; Veterans for Common Sense (VCS); Veterans of Foreign Wars (VFW); and Vietnam Veterans of America (VVA).
FY17 VSO supporters included: the American Legion; AMVETS; Association of the U.S. Navy (AUSN); Burnpits360; Disabled American Veterans (DAV); Lung Cancer Alliance; National Gulf War Resource Center (NGWRC); National Vietnam & Gulf War Veterans Coalition; Paralyzed Veterans of America (PVA); Sergeant Sullivan Circle; Toxic Wounds Task Force; Veterans for Common Sense (VCS); Veterans of Foreign Wars (VFW); Vietnam Veterans of America (VVA).
The FY15 Independent Budget Veterans Service Organizations (IBVSO’s, composed of AMVETS, DAV, PVA, VFW, and 53 other organizations that serve veterans) stated that the GWI CDMRP, “has made great strides in the short time it has been operating.” (pp. 126-27)
7) WHEN SHOULD I CALL MY SENATORS'/CONGRESSPERSON'S OFFICE?
Right away. The deadline is fast approaching. Typically, their offices need a few days to secure approval to sign-on.
8) WHEN IS THE DEADLINE?
Refer to the top of this article for the deadline to sign-on.
9) WHERE CAN I GET MORE INFORMATION?
The Gulf War Illness Research Program (GWIRP) is a Congressionally Directed Medical Research Program (CDMRP), a Congressionally directed activity funded under the U.S. Department of Defense and separate from the VA.
- GWIRP official website: http://cdmrp.army.mil/GWIRP
- GWIRP program booklet: http://cdmrp.army.mil/gwirp/pbks/gwirppbk2018.pdf
- GWIRP "The Gulf War Illness Landscape" (the state of the science on GWI): https://cdmrp.army.mil/gwirp/pdfs/GWIRP_Landscape.pdf
- About the GWIRP (published by Veterans for Common Sense): https://www.scribd.com/document/402231039/2019-About-the-Gulf-War-Illness-Research-Program-GWIRP-FY20
10) WHAT DOES RECENT RESEARCH SAY ABOUT GULF WAR ILLNESS?
In addition to the resources listed above, recent research shows that a combination of toxic exposures are likely the cause of Gulf War Illness. Psychiatric causes have been ruled out.
This paper reviews the recent medical literature on the health of 1991 Gulf War veterans, focusing particularly on the central nervous system and on effects of Gulf War toxicant exposures:
11) WHO IS CURRENTLY SIGNED ON?
This list is updated daily.
SENATE (out of 100 Senators total):
Last Name First Name State
1 Baldwin Tammy WI
3 Blumenthal Richard CT
13 Booker Cory NJ
11 Duckworth Tammy IL
17 Harris Kamala CA
10 Hirono Mazie HI
15 Klobuchar Amy MN
5 Markey Edward J. MA
6 Menendez Robert NJ
16 Peters Gary C. MI
12 Rosen Jacky NV
9 Sanders Bernie VT
14 Smith Tina MN
18 Stabenow Debbie MI
2 Tester Jon MT
4 Warren Elizabeth MA
8 Whitehouse Sheldon RI
7 Wyden Ron OR
HOUSE (out of 435 Members total) -- The 97 Members of the House who cosigned this year are: (FINAL LIST)
Last Name First Name District
1 Beatty Joyce OH-03
2 Bergman Jack MI-01
3 Bilirakis Gus M. FL-12
4 Bost Mike IL-12
5 Brindisi Anthony NY-22
6 Brown Anthony G. MD-04
7 Brownley Julia CA-26
8 Buchanan Vern FL-16
9 Bustos Cheri IL-17
10 Cárdenas Tony CA-29
11 Carson André IN-07
12 Chu Judy CA-27
13 Cicilline David N. RI-01
14 Cisneros, Jr. Gilbert R. CA-39
15 Clarke Yvette D. NY-09
16 Correa J. Luis CA-46
17 Crow Jason CO-06
18 Davis Susan A CA-53
19 Davis Danny K. IL-07
20 DeFazio Peter A. OR-04
21 DeGette Diana CO-01
22 DeLauro Rosa L. CT-03
23 Delgado Antonio NY-19
24 DeSaulnier Mark CA-11
25 Dingell Debbie MI-12
26 Doggett Lloyd TX-35
27 Dunn Neal P. FL-02
28 Escobar Veronica TX-16
29 Eshoo Anna G. CA-18
30 Espaillat Adriano NY-13
31 Gabbard Tulsi HI-02
32 Gallego Ruben AZ-07
33 Garcia Jesús G. 'Chuy" IL-04
34 González Colón Jenniffer PR-00
35 Gosar, D.D.S. Paul A. AZ-04
36 Grijalva Raúl M. AZ-03
37 Hastings Alcee L FL-20
38 Hayes Jahana CT-05
39 Horsford Steven NV-04
40 Hunter Duncan CA-50
41 Jackson Lee Sheila TX-18
42 Johnson Bill OH-06
43 Johnson, Jr. Henry C. "Hank" GA-04
44 Katko John NY-24
45 Keating William R. MA-09
46 Kim Andy NJ-03
47 Kind Ron WI-03
48 Krishnamoorthi Raja IL-08
49 Kuster Ann McLane NH-02
50 Lamborn Doug CO-05
51 Larsen Rick WA-02
52 Larson John B. CT-01
53 Lee Barbara CA-13
54 Lipinski Daniel W. IL-03
55 Loebsack David IA-02
56 Lowenthal Alan S. CA-47
57 Luria Elaine G. VA-02
58 Lynch Stephen F. MA-08
59 Marshall, M.D. Roger KS-01
60 McGovern James P. MA-02
61 McMorris Rodgers Cathy WA-05
62 Moore Gwen WI-04
63 Omar Ilhan MN-05
64 Panetta Jimmy CA-20
65 Pappas Chris NH-01
66 Payne, Jr. Donald M. NJ-10
67 Perlmutter Ed CO-07
68 Peters Scott CA-52
69 Peterson Collin C. MN-07
70 Pingree Chellie ME-01
71 Plaskett Stacey E. VI-00
72 Radewagen Aumua Amata C. AS-00
73 Raskin Jamie MD-08
74 Rice Kathleen M. NY-04
75 Richmond Cedric L. LA-02
76 Roe, M.D. Phil TN-01
77 Rouda Harley CA-48
78 Ruiz, M.D. Raul CA-36
79 Rush Bobby L. IL-01
80 Sablan Gregorio Kilili Camacho MP-00
81 Sánchez Linda T. CA-38
82 Scanlon Mary Gay PA-05
83 Schakowsky Jan IL-09
84 Shalala Donna E. FL-27
85 Sherrill Mikie NJ-11
86 Sires Albio NJ-08
87 Slotkin Elissa MI-08
88 Soto Darren FL-09
89 Speier Jackie CA-14
90 Takano Mark CA-41
91 Tipton Scott R. CO-03
92 Tlaib Rashida MI-13
93 Veasey Marc TX-33
94 Vela Filemon TX-34
95 Welch Peter VT-AL
96 Yarmuth John KY-03
97 Yoho, DVM Ted S. FL-03
11) WHO IS CURRENTLY SIGNED ON?
This list is updated daily.
This list is updated daily.
SENATE (out of 100 Senators total):
Last Name | First Name | State | |
1 | Baldwin | Tammy | WI |
3 | Blumenthal | Richard | CT |
13 | Booker | Cory | NJ |
11 | Duckworth | Tammy | IL |
17 | Harris | Kamala | CA |
10 | Hirono | Mazie | HI |
15 | Klobuchar | Amy | MN |
5 | Markey | Edward J. | MA |
6 | Menendez | Robert | NJ |
16 | Peters | Gary C. | MI |
12 | Rosen | Jacky | NV |
9 | Sanders | Bernie | VT |
14 | Smith | Tina | MN |
18 | Stabenow | Debbie | MI |
2 | Tester | Jon | MT |
4 | Warren | Elizabeth | MA |
8 | Whitehouse | Sheldon | RI |
7 | Wyden | Ron | OR |
HOUSE (out of 435 Members total) -- The 97 Members of the House who cosigned this year are: (FINAL LIST)
Last Name | First Name | District | |
1 | Beatty | Joyce | OH-03 |
2 | Bergman | Jack | MI-01 |
3 | Bilirakis | Gus M. | FL-12 |
4 | Bost | Mike | IL-12 |
5 | Brindisi | Anthony | NY-22 |
6 | Brown | Anthony G. | MD-04 |
7 | Brownley | Julia | CA-26 |
8 | Buchanan | Vern | FL-16 |
9 | Bustos | Cheri | IL-17 |
10 | Cárdenas | Tony | CA-29 |
11 | Carson | André | IN-07 |
12 | Chu | Judy | CA-27 |
13 | Cicilline | David N. | RI-01 |
14 | Cisneros, Jr. | Gilbert R. | CA-39 |
15 | Clarke | Yvette D. | NY-09 |
16 | Correa | J. Luis | CA-46 |
17 | Crow | Jason | CO-06 |
18 | Davis | Susan A | CA-53 |
19 | Davis | Danny K. | IL-07 |
20 | DeFazio | Peter A. | OR-04 |
21 | DeGette | Diana | CO-01 |
22 | DeLauro | Rosa L. | CT-03 |
23 | Delgado | Antonio | NY-19 |
24 | DeSaulnier | Mark | CA-11 |
25 | Dingell | Debbie | MI-12 |
26 | Doggett | Lloyd | TX-35 |
27 | Dunn | Neal P. | FL-02 |
28 | Escobar | Veronica | TX-16 |
29 | Eshoo | Anna G. | CA-18 |
30 | Espaillat | Adriano | NY-13 |
31 | Gabbard | Tulsi | HI-02 |
32 | Gallego | Ruben | AZ-07 |
33 | Garcia | Jesús G. 'Chuy" | IL-04 |
34 | González Colón | Jenniffer | PR-00 |
35 | Gosar, D.D.S. | Paul A. | AZ-04 |
36 | Grijalva | Raúl M. | AZ-03 |
37 | Hastings | Alcee L | FL-20 |
38 | Hayes | Jahana | CT-05 |
39 | Horsford | Steven | NV-04 |
40 | Hunter | Duncan | CA-50 |
41 | Jackson Lee | Sheila | TX-18 |
42 | Johnson | Bill | OH-06 |
43 | Johnson, Jr. | Henry C. "Hank" | GA-04 |
44 | Katko | John | NY-24 |
45 | Keating | William R. | MA-09 |
46 | Kim | Andy | NJ-03 |
47 | Kind | Ron | WI-03 |
48 | Krishnamoorthi | Raja | IL-08 |
49 | Kuster | Ann McLane | NH-02 |
50 | Lamborn | Doug | CO-05 |
51 | Larsen | Rick | WA-02 |
52 | Larson | John B. | CT-01 |
53 | Lee | Barbara | CA-13 |
54 | Lipinski | Daniel W. | IL-03 |
55 | Loebsack | David | IA-02 |
56 | Lowenthal | Alan S. | CA-47 |
57 | Luria | Elaine G. | VA-02 |
58 | Lynch | Stephen F. | MA-08 |
59 | Marshall, M.D. | Roger | KS-01 |
60 | McGovern | James P. | MA-02 |
61 | McMorris Rodgers | Cathy | WA-05 |
62 | Moore | Gwen | WI-04 |
63 | Omar | Ilhan | MN-05 |
64 | Panetta | Jimmy | CA-20 |
65 | Pappas | Chris | NH-01 |
66 | Payne, Jr. | Donald M. | NJ-10 |
67 | Perlmutter | Ed | CO-07 |
68 | Peters | Scott | CA-52 |
69 | Peterson | Collin C. | MN-07 |
70 | Pingree | Chellie | ME-01 |
71 | Plaskett | Stacey E. | VI-00 |
72 | Radewagen | Aumua Amata C. | AS-00 |
73 | Raskin | Jamie | MD-08 |
74 | Rice | Kathleen M. | NY-04 |
75 | Richmond | Cedric L. | LA-02 |
76 | Roe, M.D. | Phil | TN-01 |
77 | Rouda | Harley | CA-48 |
78 | Ruiz, M.D. | Raul | CA-36 |
79 | Rush | Bobby L. | IL-01 |
80 | Sablan | Gregorio Kilili Camacho | MP-00 |
81 | Sánchez | Linda T. | CA-38 |
82 | Scanlon | Mary Gay | PA-05 |
83 | Schakowsky | Jan | IL-09 |
84 | Shalala | Donna E. | FL-27 |
85 | Sherrill | Mikie | NJ-11 |
86 | Sires | Albio | NJ-08 |
87 | Slotkin | Elissa | MI-08 |
88 | Soto | Darren | FL-09 |
89 | Speier | Jackie | CA-14 |
90 | Takano | Mark | CA-41 |
91 | Tipton | Scott R. | CO-03 |
92 | Tlaib | Rashida | MI-13 |
93 | Veasey | Marc | TX-33 |
94 | Vela | Filemon | TX-34 |
95 | Welch | Peter | VT-AL |
96 | Yarmuth | John | KY-03 |
97 | Yoho, DVM | Ted S. | FL-03 |
12) WHAT DOES THE "DEAR COLLEAGUE" LETTER ACTUALLY SAY?
****
SENATE FY20 DEAR COLLEAGUE:
****
HOUSE FY20 EDC and DEAR COLLEAGUE:
*****
--Anthony Hardie, 91outcomes.com Author and Gulf War veteran advocate.
The text of the Sablan-Bergman (House) and Baldwin (Senate) Dear Colleague letters is below. They are naturally very similar.
****
SENATE FY20 DEAR COLLEAGUE:
MARCH xx, 2019
The Honorable Richard Shelby The Honorable Richard Durbin
Chairman Vice Chairman
Subcommittee on Defense Subcommittee on Defense
Committee on Appropriations Committee on Appropriations
119 Dirksen Senate Office Building 113 Hart Senate Office Building
Washington, DC 20510 Washington, DC 20510
Dear Chairman Shelby and Vice Chairman Durbin:
Thank you for your continued support for the Gulf War Illness Research Program (GWIRP) within the Department of Defense (DoD) Congressionally Directed Medical Research Programs (CDMRP), including the $22 million provided in Fiscal Year (FY) 2019. As your Subcommittee begins work on the FY 2020 DoD Appropriations Bill, we are writing to share details of the program and to respectfully request that you include adequate funding to continue the GWIRP’s successful work on behalf of Gulf War veterans.
By congressional design, the GWIRP is a unique medical research program narrowly focused on a vision of improved health and lives of Veterans who have Gulf War Illness (GWI).[1] Successive reports by the congressionally-mandated Research Advisory Committee on Gulf War Veterans' Illnesses (RAC) and the National Academy of Sciences (NASEM) have shown that: 1) Gulf War Illness (GWI) is a physical condition – likely caused by toxic exposures – that affects up to one-third of the nearly 700,000 veterans who served in the 1991 Persian Gulf War; 2) Debilitating GWI symptoms typically include "some combination of widespread pain, headache, persistent problems with memory and thinking, fatigue, breathing problems, stomach and intestinal symptoms, and skin abnormalities."[2](p.2),[3]
While two-thirds of GWIRP studies are still in progress, the positive news is that there is a growing body of GWIRP-funded study results, many published in peer-reviewed scientific journals, that demonstrates steady advances of GWIRP’s goals of identifying underlying mechanisms, diagnostic markers, and treatments.1 For example, the GWIRP-funded consortia at Boston University and Nova Southeastern University identified several potential treatments through their interdisciplinary preclinical and computational biology research projects; those treatments will now be tested in the Gulf War Illness Clinical Trials and Interventions Consortium (GWICTIC), which will include five clinical trials at seven study sites (three VA) to target GWI’s inflammation, energy production, and immune function issues.[4] And, the GWIRP-funded Boston Biorepository, Recruitment, and Integrative Network (BBRAIN) will aggregate biological samples and data to further advance GWI diagnostic marker efforts.4These successes are the direct result of clear treatment-focused congressional direction, stable appropriations for the GWIRP, and effective GWIRP management.
Recognizing the program's progress, the last RAC report's recommendations remain instructive:
"Congress should maintain its funding to support the effective treatment-oriented [GWIRP]."2(p.14) These gradually building scientific results continue to represent encouraging steps toward achieving the 2010 NASEM treatment goals "to speed the development of effective treatments, cures, and, it is hoped, preventions"3(p.1) for current and future U.S. forces at risk of similar exposures and outcomes. Indeed, the GWIRP has served as a model of how to conduct treatment-oriented research to address a challenging illness and is succeeding where earlier programs failed. Its two-tier peer-reviewed and highly competitive process ensures the independence and value of the results produced. While VA’s research program is intramural (it only funds VA researchers), GWIRP is not similarly constrained and seeks to find and fund the best research by any combination of government, academic, or private-sector research teams.
We respectfully request that you provide the necessary resources to continue this vital and effective program in the FY20 DoD Appropriations Bill. Furthermore, it is critical to the program's success and accountability that it remains a stand-alone program within the CDMRP and not be combined as a topic area within broader, less-targeted research programs.
Thank you for your consideration of our request, which is supported by the Veterans of Foreign Wars (VFW), Veterans for Common Sense, Disabled American Veterans (DAV), Vietnam Veterans of America (VVA), Iraq and Afghanistan Veterans of America (IAVA), AMVETS, Paralyzed Veterans of America (PVA), Blinded Veterans Association, The Enlisted Association (TREA), Military Officers Association of America (MOAA), Fleet Reserve Association, Association of the United States Navy (AUSN), Air Force Sergeants Association (AFSA), National Gulf War Resource Center, Burn Pits 360, Sgt. Sullivan Circle, and the National Vietnam and Gulf War Coalition.
Sincerely,
****
HOUSE FY20 EDC and DEAR COLLEAGUE:
Support FY20 funding for DoD-CDMRP
Gulf War Illness Treatment Research
Gulf War Illness Treatment Research
Deadline to sign on is Thursday, March 29 2019
Dear Colleague:
We invite you to join us in sending a letter (text below) to the House Defense Appropriations Subcommittee urging continued support in FY 2020 for the treatment-focused Gulf War Illness Research Program within the Department of Defense Congressionally Directed Medical Research Programs (CDMRP).
The Gulf War Illness Research Program is a unique federal program with an unprecedented vision to achieve,“improved health and lives of Veterans who have Gulf War Illness.” The GWIRP continues to succeed in efforts to “fund innovative Gulf War Illness (GWI) research to identify effective treatment and accelerate their clinical application, improve definition and diagnosis, and better understand pathobiology and symptoms.”As specified in more detail in the letter, the GWIRP continues to demonstrate its effectiveness in its mission to improve the health and lives of veterans debilitated and suffering from Gulf War Illness. We need to ensure that these efforts continue for these veterans and for current and future U.S. forces at risk of similar exposures and outcomes.
By congressional design, the Congressionally-directed Gulf War Illness Research Program (GWIRP) is a unique medical research program narrowly focused on identifying treatments and diagnostic markers for Gulf War Illness (GWI).1
The most recent report of the Congressionally-mandated Research Advisory Committee on Gulf War Veterans’ Illnesses (RAC) recommended maintaining funding for this effective treatment-oriented program.
The FY 2019 GWIRP request was supported by 83 offices, including current House Veterans Affairs Committee Chairman Takano and Ranking Member Roe, as well as then-Ranking Member Tim Walz and signed onto the letter.
The Veterans of Foreign Wars and Veterans for Common Sensesupport this funding request.
The deadline to sign on is March 28, 2019. Please contact Frances Diazat in Rep. Sablan’s office or Remy Fortin in Rep. Bergman’s office for more information or to sign this letter.
Sincerely,
GREGORIO SABLAN JACK BERGMAN
Member of Congress Member of Congress
----------------------------------------------------------------------
April 1, 2019
The Honorable Pete Visclosky The Honorable Ken Calvert
Chairman Ranking Member
Subcommittee on Defense Subcommittee on Defense
Committee on Appropriations Committee on Appropriations
H-405, The Capitol, 1016 Longworth House Office Building
Washington, DC 20515 Washington, DC 20515
Dear Chairman Visclosky and Ranking Member Calvert:
As your Subcommittee begins work on the Fiscal Year 2020 Defense Appropriations Bill, we respectfully request adequate funding for the Gulf War Illness Research Program within the Department of Defense Congressionally Directed Medical Research Programs (CDMRP). We
also thank you for providing the program $22 million in Fiscal Year 2019.
By congressional design, the GWIRP is a unique medical research program narrowly focused on the vision of improving the health and lives of Veterans with Gulf War Illness.
Reports by the congressionally-mandated Research Advisory Committee on Gulf War Veterans' Illnesses (RAC) and the National Academy of Sciences (NASEM) have shown that: 1) GWI is a
physical condition - likely caused by toxic exposures - that affects up to one-third of the nearly
700,000 veterans who served in the 1991 Persian Gulf War; 2) Debilitating GWI symptoms typically include "some combination of widespread pain, headache, persistent problems with
memory and thinking, fatigue, breathing problems, stomach and intestinal symptoms, and skin abnormalities." [1 • 2]
Two-thirds of GWIRP studies are still in progress. However, the positive news is that
there is a growing body of GWIRP-funded study results, many published in peer-reviewed
scientific journals, that demonstrate steady advances of GWIRP's goals of identifying underlying mechanisms, diagnostic markers, and treatments. For example, the GWIRP-funded consortia at
Boston University and Nova Southeastern University identified several potential treatments
through their interdisciplinary preclinical and computational biology research projects. Those
treatments will now be tested in the Gulf War Illness Clinical Trials and Interventions
Consortium, which will include five clinical trials at seven study sites to target OWi's
inflammation, energy production, and immune function issues.[3] Additionally, the GWIRP-funded Boston Biorepository, Recruitment, and Integrative Network will aggregate biological samples
and data to further advance GWI diagnostic marker efforts. These successes are the direct result of clear, treatment-focused congressional direction, stable appropriations for the GWIRP, and effective GWIRP management.
Recognizing the program's progress, the most recent RAC report's recommendations remain instructive: "Congress should maintain its funding to support the effective treatmentoriented [GWIRP]."[4] The discoveries through the program continue to represent encouraging steps toward achieving the 2010 NASEM treatment goals "to speed the development of effective treatments, cures, and, it is hoped, preventions" for current and future U.S. forces at risk of similar exposures and outcomes. Indeed, the GWIRP has served as a model of how to conduct treatmentoriented research to address a challenging illness and is succeeding where earlier programs failed. Its two-tier peer-reviewed and highly competitive process ensures the independence and value of the results produced. Unlike the VA's GWI research program which only funds VA researchers, GWIRP seeks out and funds the best research by any combination of government, academic, or private-sector research teams.
We respectfully request that you provide the necessary resources to continue this vital and effective program in the FY20 Defense Appropriations Bill. Furthermore, it is critical to the program's success and accountability that it remains a stand-alone program within the CDMRP and not be combined as a topic area within broader, less-targeted research programs.
Thank you for your consideration of our request, which is supported by the Veterans of Foreign Wars (VFW), Veterans for Common Sense, Vietnam Veterans of America (VVA), Iraq and Afghanistan Veterans of America (IAVA), AMVETS, Paralyzed Veterans of America (PVA), Blinded Veterans Association (BV A), The Retired Enlisted Association (TREA), Military Officers Association of America (MOAA), National Gulf War Resource Center, Bum Pits 360, Sgt. Sullivan Circle, National Vietnam & Gulf War Veterans Coalition.
Sincerely,
As your Subcommittee begins work on the Fiscal Year 2020 Defense Appropriations Bill, we respectfully request adequate funding for the Gulf War Illness Research Program within the Department of Defense Congressionally Directed Medical Research Programs (CDMRP). We
also thank you for providing the program $22 million in Fiscal Year 2019.
By congressional design, the GWIRP is a unique medical research program narrowly focused on the vision of improving the health and lives of Veterans with Gulf War Illness.
Reports by the congressionally-mandated Research Advisory Committee on Gulf War Veterans' Illnesses (RAC) and the National Academy of Sciences (NASEM) have shown that: 1) GWI is a
physical condition - likely caused by toxic exposures - that affects up to one-third of the nearly
700,000 veterans who served in the 1991 Persian Gulf War; 2) Debilitating GWI symptoms typically include "some combination of widespread pain, headache, persistent problems with
memory and thinking, fatigue, breathing problems, stomach and intestinal symptoms, and skin abnormalities." [1 • 2]
Two-thirds of GWIRP studies are still in progress. However, the positive news is that
there is a growing body of GWIRP-funded study results, many published in peer-reviewed
scientific journals, that demonstrate steady advances of GWIRP's goals of identifying underlying mechanisms, diagnostic markers, and treatments. For example, the GWIRP-funded consortia at
Boston University and Nova Southeastern University identified several potential treatments
through their interdisciplinary preclinical and computational biology research projects. Those
treatments will now be tested in the Gulf War Illness Clinical Trials and Interventions
Consortium, which will include five clinical trials at seven study sites to target OWi's
inflammation, energy production, and immune function issues.[3] Additionally, the GWIRP-funded Boston Biorepository, Recruitment, and Integrative Network will aggregate biological samples
and data to further advance GWI diagnostic marker efforts. These successes are the direct result of clear, treatment-focused congressional direction, stable appropriations for the GWIRP, and effective GWIRP management.
Recognizing the program's progress, the most recent RAC report's recommendations remain instructive: "Congress should maintain its funding to support the effective treatmentoriented [GWIRP]."[4] The discoveries through the program continue to represent encouraging steps toward achieving the 2010 NASEM treatment goals "to speed the development of effective treatments, cures, and, it is hoped, preventions" for current and future U.S. forces at risk of similar exposures and outcomes. Indeed, the GWIRP has served as a model of how to conduct treatmentoriented research to address a challenging illness and is succeeding where earlier programs failed. Its two-tier peer-reviewed and highly competitive process ensures the independence and value of the results produced. Unlike the VA's GWI research program which only funds VA researchers, GWIRP seeks out and funds the best research by any combination of government, academic, or private-sector research teams.
We respectfully request that you provide the necessary resources to continue this vital and effective program in the FY20 Defense Appropriations Bill. Furthermore, it is critical to the program's success and accountability that it remains a stand-alone program within the CDMRP and not be combined as a topic area within broader, less-targeted research programs.
Thank you for your consideration of our request, which is supported by the Veterans of Foreign Wars (VFW), Veterans for Common Sense, Vietnam Veterans of America (VVA), Iraq and Afghanistan Veterans of America (IAVA), AMVETS, Paralyzed Veterans of America (PVA), Blinded Veterans Association (BV A), The Retired Enlisted Association (TREA), Military Officers Association of America (MOAA), National Gulf War Resource Center, Bum Pits 360, Sgt. Sullivan Circle, National Vietnam & Gulf War Veterans Coalition.
Sincerely,
GREGORIO KILILI CAMACHO SABLAN JACK BERGMAN
Member of Congress Member of Congress
MARK TAKANO PHIL ROE, M.D.
Member of Congress Member of Congress
...with 97 total Members of Congress cosigning.
[1]Research Advisory Committee on Gulf War Veterans' Illnesses, U.S. Department of Veterans Affairs, “Gulf War Illness and the Health of Gulf War Veterans: Research Update and Recommendations, 2009-2013,” 2014.
[2]National Academy of Sciences, Institute of Medicine, “Gulf War and Health, Volume 8: Update of Health Effects of Serving in the Gulf War,” 2010.
[4]Research Advisory Committee on Gulf War Veterans' Illnesses, U.S. Department of Veterans Affairs, “Gulf War Illness and the Health of Gulf War Veterans: Research Update and Recommendations, 2009-2013,” 2014
*****
--Anthony Hardie, 91outcomes.com Author and Gulf War veteran advocate.
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